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Thursday, 3 October 2013

Day 20 - Tuesday October 1st 2013

Awoke with a cat on my head, don't ask lol. My walking today was much better and rising to a standing position, much quicker so I started my exercises again.

Worked on my legs doing various exercises for roughly 40 mins and my arms for a lot longer and wired up the electro muscular stimulator for about an hour.

It's very important if you suffer from MS, or any other illness, you should try and exercise a little..what is that they say "if you don't use it you lose it". It's very important to keep your strength up with MS or any illness I would imagine.

Breakfast - none

Lunch - none

Dinner - Indian takeaway - North Indian Garlic Chicken Curry, pilau rice, vegetable pakora, plain nan bread, popadoms, 4 bottles Budweiser

Diet took a back seat today

Tuesday, 1 October 2013

Day 19 - Monday September 30th 2013

I had 21/2 hours sleep tops last night, this lack of sleep is really pissing me off now!! Before I got my ass off the sofa and started moving around, I was thinking to myself...great another day where lack of sleep contributed with everything else, was not going to bode well for my dancing moves today lol but imagine my surprise when my walking was decent today...I was more than happy, I was ecstatic.

I spent today lost in my music and eating healthy.

Breakfast - Porridge with pumpkin seeds, glass of fresh orange

Lunch - Tuna and cucumber sandwich, 500ml bottle of water

Dinner - Steak pie, potatoes, garden peas, baby carrots, kale, strawberry cheesecake, 500ml bottle of water

Sunday, 29 September 2013

Day 18 - Sunday September 29th 2013

Today was the day when I realised I need my medication as that's been 3 weeks that I have been off my MS drug Gilenya....long story. My next delivery is Friday 4th October, looking forward to getting back on an even keel.

Moral of the story, keep taking your meds they are doing you some good.

Today was a bad leg day...that's all I seem to write about these days, but I am determined this is going to change. I have set myself a goal, by my 37th birthday, March 18th...I want to have no issues with my leg, hell I want to moonwalk out of that bar after some birthday drinks lol.

I think it's especially important to work towards a goal for your mental health in your general life but especially so when your battling against an illness...I'm too young...it's not going to beat me.

In my case it definitely a combination of a few things leading to my issues...lack of medication (a big no no), lack of sleep (2 hours tonight) lack of appetite or not eating correctly.

I took the Mustang out today but these hand controls are a nightmare...yeah the Mustang doesn't make the best disabled friendly car lol but this will certainly not beat me...practice makes perfect!!

I lost my appetite today, was nowhere to be seen.

Breakfast - Toast & butter, cup of tea

Lunch - None

Snack - Ice cream

Dinner - Burger

Day 17 - Saturday September 28th 2013

Saturday is the day I have my 7yo boy who is a handful and all the exercise I need of a day lol.

I was thrilled to hear from my personal trainer who has said they are putting their all into helping me get more stronger and fitter. They are having a frame designed with a step to help do heel drops etc.. to strengthen my legs. And various other ideas to help me...an angel sent from heaven :-)

My diet consisted today of mostly fizzy sweets....I know lol.

My left leg playing up still and I'm determined to sort this out. It's a weakness I think is coming from my hip, so will focus on this area. And build up my core strength also.

Not much to say of this day other than it was great to spend it with my son.

Breakfast - Toast and butter, cup of tea.

Lunch - None

Dinner - Small portion of chicken curry

Shocking I know.

Saturday, 28 September 2013

Day 16 - Friday September 27th 2013

After 4am when I finally made it to sleep lol, not doing myself much favours...so what lol...as Jon Bon Jovi sang "I'll sleep when I'm dead".

Today I met with someone who has offered to help me in my battle, who has bags of experience and is a lovely person to boot.

Today I awoke very sore in the shoulder department, I don't know if it's sleeping on the couch or working muscles I haven't worked in a while. Most people would just go to bed, but I love my tv too much lol...maybe time for a new couch lol.

Symptoms wise today, this left leg is, to put it frank, pissing me off!!! Almost like dragging my foot and difficult to lift, don't know if it's coming from the knee or the hip. But not letting it get me down as I know, in time, I will get over this.

Well zero exercise today, but read some more of Dr Wahls book and relaxed listening to some music, and ordered lots of fruit and veg online for delivery.

Breakfast - None

Lunch - Tomato Soup

Dinner - Scrambled egg on toast, bowl of mixed fruit

One of those 'not hungry' days.


Friday, 27 September 2013

Day 15 - Thursday September 26th 2013

Today I woke feeling under the weather,  not to mention my sleeping pattern is up the left and my diet has suffered somewhat, I have temporarily lost my Mojo.

I'm still very much suffering from last weekends exercise session overload. I have little to no patience and be careful, as like me, if you go all out you will be put more than a few steps back. There is no quick fix to feeling stronger with MS...it takes time!!!!

I have recommended Dr Wahls on here and her remarkable story. I did notice a massive difference fairly quickly into the start of following her diet. But with not feeling great these past few days, I have been slipping up in this department also.

I weighed myself today and lost 2lbs since last Thursday, not great but sill a loss....right?

Exercise was poor today and mainly consisted of standing more.

Breakfast - Bowl of cornflakes and milk, glass of fresh orange

Lunch - Bowl of chicken soup, apple, 2 x bananas, 500ml bottle of water

Dinner - Bowl of vegetable soup, corned beef and beans, strawberry trifle, 500ml bottle of water




Thursday, 26 September 2013

Day 14 - Wedesday September 25th 2013

Tonight I slept for 2 hours, fatigue seems to be a thing of the past or perhaps sleeping on the couch watching horror movie all night doesn't help lol.

My fatigue is effecting me in different ways now, mainly my weak left leg is annoying me big stle now, so much so, i have kindly been offered help from someone who is experienced in this area...thank you. I am noticing also my speech slurring at times, great for those annoying sales calls, but otherwise not cool, but it's just one of those things.

For those out there with MS please try and stay strong and try and not get too disheartened. I read a story of a man who had it for nearly 70 years..yes 70 years. MS is certainly not a death sentence and this old dude died at 96 on crashing his car.

There is a fantastic autobiography by the TV star Montell Williams (who is also a sufferer) and he lives by his motto "I have MS, MS doesn't have me" to say he is in control is an understatement...see his youtube videos.

As far as exercise goes today I done very little. It important you know your limits and stick with them....don't be like me, lack of patience and looking for quick results, I'm still suffering from my exercising session on Sunday. It's also very important to rest and take your mind away...for me it either listening to my music,  loudly...or meditating. I learned Transcendental Meditation some years ago but after a refresher recently, I picked it up again.

Breakfast - Roll with butter, cup of tea

Lunch - Tuna, lettuce and kale, bowl of grapes, 500ml bottle of water

Dinner - Beans on toast, 500ml bottle of water

One of those not hungry days